Information about project titled 'How valid are data from registries? An analysis of the compliance of clinical registries'
How valid are data from registries? An analysis of the compliance of clinical registries
| Details about the project - category | Details about the project - value |
|---|---|
| Project status: | Published |
| Project manager: | Cathrine Nørstad Eftang, Katherine Wang |
| Supervisor(s): | Rune B. Jakobsen, Asbjørn Årøen |
Description
Background: The number of surgical and medical quality registers are increasing. Several successful orthopedic registries are established, and several have led to improved treatment. In order for a quality register to be successful, we are dependent on high-quality data.
Aim: We aim to investigate the completeness of the data within a surgical or a medical health quality register.
Methods: We performed a systematic literature search and included articles that presented patient response rates on patient-reported outcome measures in either register studies or larger cohort studies.
Implications: The results from this project will be useful in establishing new quality registries, and will contribute to improved data quality in existing registries.